Chronically Courageous
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I spent all day looking up dessert recipes that I cannot eat, longingly wishing, as my feeding tube pump continuously beeped at me to add more formula to my bags. How come we never realize how blessed we are until that something gets taken away?

Anonymous asked: I have a close friend who is suffering from a chronic illness. Lately she has been extra depressed because of it. I want to make her a little care package to help her feel extra loved during this. I have some personal ideas, but I was wonder if you or any followers would have some insight on something a home bound person might like that I'm not thinking of. Thanks!!


First off, I want to stand up and slow clap for you. Seriously. Everyone needs a friend like you. Big props. Its huge that you are first, being a good friend, and second, being aware of your friends emotions. Here are some ideas from things I’ve been given: fuzzy socks, chap stick, coloring books, journal, CD with your favorite songs (or music gift card), favorite treats depending on their conditions, anything they can do from bed, ie card games, crafts like bracelet making, sewing kits, paint by number or anything like that that they might enjoy. Movies, books, magazines, suduko/crossword, notebook, pens/markers, T-shirt/sweats, waterbottle/mug, nail polish, headbands, lotion, blanket. I hope that these help. But just the thought is huge and will mean so much, being chronically ill isn’t easy and having someone in your corner is huge! I thank YOU for being such a good friend to your chronically ill friend, because they need someone like you! If anyone else has any other ideas, don’t be afraid to speak up!

Anonymous asked: I love your blog so much. and you. And everything.


Thank you! Glad that someone does! Xoxo Big hugs! 😘

Michelle K., Overcoming My Diagnoses. (via michellekpoems)

(via colorfully-caroline)

It is a diagnosis,
not a definition.
It does not know you,
nor does it own you.
Anonymous asked: Hi I just read your story (with the two pictures) and I just wanted to say that I think that you are amazing! To go through so much constant pain and hardship and still have such a strong sense of self and confidence is just really astounding to me. I also really liked the way you articulated everything - especially just the simple sentence "Because this is my life." I dunno, that just really struck me. I sincerely hope that things get better for you!! Sending good vibes your way! :)


Thank you so much! I love writing but I don’t have very much confidence in it, so complimenting how I write means SO much to me! Thank you for all your kind and uplifting words, I’ve had a rough few weeks so they came at a perfect time! Thank you, you are wonderful!

emperorvonbears (via everydayableism)

(via chronicillnessmemes)

Would you ever physically grab a stranger, by the hand or body, in the street, in a shop, in any public space, and physically move them around without their consent?
So at what point does it become okay to grab the handles of a wheelchair, to snatch at what is an extension of the body for the purposes of mobility, and move a person around without their consent?
The former would be abhorrent, and the latter potentially more so as you are taking control of their mobility. This includes their ability to get away.
Yet time and time again I hear of strangers grabbing the handles of chairs and physically moving people without their consent. This is an act of ignorance, and of borderline assault. Grabbing a person, for comedy or novelty, and taking away their ability to move and also to get away. When you are handling a person’s wheelchair, they cannot necessarily escape, they may have no way to move as you are in control of their legs.
Unless given expressed permission, never, EVER take control of a person’s wheelchair.
This is beyond etiquette, it is about bodily integrity and security.
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