Chronically Courageous
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Anonymous asked: I love your blog!!! I'm a spoonie too, I have 18 different illnesses and dr's think I may have more too. At age 15 I was in a coma, it was a very hard recovery when I woke up. I wasn't even supposed to make it, and I had to learn to walk and talk again. Can we be spoonie friends? :)


Answer:

Oh my gosh, you are sooo strong and inspiring! I know what it’s like to face multiple chronic illnesses, and its not easy! Of course I’d LOVE to be friends! The more spoonie friends the better!!! I’m Whitney by the way!

Anonymous asked: Pt 2. but do have an issue like scoliosis or degenerative disc disease or something else that's not an "illness" per se and is more just a disability, fit into the community? What makes someone chronically ill? Do mental illness count as chronic illnesses? Thank you for your help!


Answer:

A chronic illness (or disease) is an illness that is long lasting and can only be treated, not cured. Lots of people consider Spoonies to be a “certain” thing. However, reading the spoon theory can help. My personal opinion, is any affliction of the body or mind, that changes how you live your day to day life and impact you, will put you into the category as Spoonie. A lot of people might disagree with me but that’s just what I believe, so yes mental illness could put you into the spoonie category. Also chronic illnesses and disability can sometimes go hand in hand because chronic illnesses can be disabling. One of the many disease I have is scoliosis and I’m considered a spoonie. I hope this helps answer your questions!

Anonymous asked: Pt 1. Disclaimer: I'm new to the chronically ill/spoonie community so I'm not trying to be offensive, but I might say something wrong because I don't know the proper terminology. Also, just as an fyi, I asked another blog this same question but a) I want to get different perspectives and b) different people take different amounts of time answering asks. If you don't want to answer this, could you refer me to a blog/tumblr user who might? Okay, so, how do people who don't have a chronic illness,


Answer:

A chronic illness (or disease) is an illness that is long lasting and can only be treated, not cured. Lots of people consider Spoonies to be a “certain” thing. However, reading the spoon theory can help. My personal opinion, is any affliction of the body or mind, that changes how you live your day to day life and impact you, will put you into the category as Spoonie. A lot of people might disagree with me but that’s just what I believe, so yes mental illness could put you into the spoonie category. Also chronic illnesses and disability can sometimes go hand in hand because chronic illnesses can be disabling. One of the many disease I have is scoliosis and I’m considered a spoonie. I hope this helps answer your questions!

Anonymous asked: I just wanted to tell you that you are a fantastic human being. I just recently got diagnosed with chronic migraine disorder, which is probably no comparison to what you experience on a daily basis, but either way, you inspire me to keep fighting. Thank you.


Answer:

Oh my gosh thank you so much! And NO, just no. Don’t compare. Illness is illness, regardless of the name or type. I also have been diagnosed with chronic migraines and out of my 30 illnesses, it is one of THEE worst and most debilitating. Props to you for being a fighter! And never put yourself down, you’re amazing for going through what you do. Keep up the good work and never give up!

jumbleofpassions:

Ableism is telling someone with a chronic illness (or any disability) that they just need to have a “positive attitude” and then they will feel better.

(via holyringsofbetazed)

Anonymous asked: I know this is an awful thing to ask or think about but I'm just curious. Are you dying? Like do doctors say you only have a certain amount of time to live? Or are you going to live a full life but just dealing with your illnesses? Also, what does your daily life consist of? I'm new to your blog and am just wondering. :) You're amazing by the way! Stay strong! <3


Answer:

I do have a very poor prognosis and have been given life expectancy variables by several doctors, but I defy the odds in every aspect of my life, so I try not too dwell too much on the numbers, because when it really comes down to it, we all have limited time! However, I plan on living an incredibly full life (at whatever age) while managing my illnesses.

An average day consists of me packing whatever I need from my room into my backpack (since I live in the basement and stairs are a beast) hooking up to my feeding tube pump on the main floor. Hang out with my mom, do some homework, take a nap, play with my dogs, watch movies, do my medical to do list, hang out with siblings, read, maybe go to the store…etc. I live a boring life at the moment due to my illness, but I get to be surrounded by my family which makes me extremely grateful.

I just can’t do this anymore. I’m so tired of being sick. It consumes me. It envelopes me. I just can’t do this anymore. I’ll try again tomorrow, but for today, I quit.

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