Chronically Courageous
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Anonymous asked: I just wanted to tell you that you are a fantastic human being. I just recently got diagnosed with chronic migraine disorder, which is probably no comparison to what you experience on a daily basis, but either way, you inspire me to keep fighting. Thank you.


Answer:

Oh my gosh thank you so much! And NO, just no. Don’t compare. Illness is illness, regardless of the name or type. I also have been diagnosed with chronic migraines and out of my 30 illnesses, it is one of THEE worst and most debilitating. Props to you for being a fighter! And never put yourself down, you’re amazing for going through what you do. Keep up the good work and never give up!

jumbleofpassions:

Ableism is telling someone with a chronic illness (or any disability) that they just need to have a “positive attitude” and then they will feel better.

(via ech0tang0)

Anonymous asked: I know this is an awful thing to ask or think about but I'm just curious. Are you dying? Like do doctors say you only have a certain amount of time to live? Or are you going to live a full life but just dealing with your illnesses? Also, what does your daily life consist of? I'm new to your blog and am just wondering. :) You're amazing by the way! Stay strong! <3


Answer:

I do have a very poor prognosis and have been given life expectancy variables by several doctors, but I defy the odds in every aspect of my life, so I try not too dwell too much on the numbers, because when it really comes down to it, we all have limited time! However, I plan on living an incredibly full life (at whatever age) while managing my illnesses.

An average day consists of me packing whatever I need from my room into my backpack (since I live in the basement and stairs are a beast) hooking up to my feeding tube pump on the main floor. Hang out with my mom, do some homework, take a nap, play with my dogs, watch movies, do my medical to do list, hang out with siblings, read, maybe go to the store…etc. I live a boring life at the moment due to my illness, but I get to be surrounded by my family which makes me extremely grateful.

I just can’t do this anymore. I’m so tired of being sick. It consumes me. It envelopes me. I just can’t do this anymore. I’ll try again tomorrow, but for today, I quit.

badboyzaynx asked: How did you get through high school with chronic pain? because im currently struggling with that :/ I haven't been to school in almost 2 weeks because im in so much pain I physically cannot tolerate sitting down for 30 minutes let alone 8 hours.


Answer:

I only made it to my Junior year (I spent my senior year in the home in hospital program). Something that really helped me is sitting down with each teacher, with my mom and explaining to them what I was going through, and having a note from my doctor explaining my limitations. All of my teachers after that were understanding, for example, if I had a migraine and needed to wear sunglasses inside they didn’t mind. Maybe talk to them and ask them if you could sit in the back and stand up every 10 or so minutes. If they know your situation, a lot of times they will try to be as accommodating as possible. Another thing I did, is I found one person in each class to help me, so the days I missed they would make a copy of the notes, and I’d call them and they’d go over things with me. Also really get involved with your school counselor, they WANT to help you. They might have Packets (count as credits) so you only have to go for half a day. Hope this helps! 

karlos86 asked: Your extreme pricing made me laugh! I think with that level of piercing you have achieved a new level of punk. :) keep strong, and keep your humor.


Answer:

I know, I figure it’s pretty much a gauge piercing! Thank you!

petitgiroflee asked: You inspire me <3


Answer:

Thank you SO much!

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